Comments for B-12 ANEMIA http://www.b12anemia.org Understanding vitamin B-12 deficiency anemia Fri, 26 Feb 2010 15:44:12 -0600 http://wordpress.org/?v=2.8.4 hourly 1 Comment on B12 deficiency – what the numbers mean by Donna http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1779 Donna Fri, 26 Feb 2010 15:44:12 +0000 http://www.b12anemia.org/?p=50#comment-1779 I have Lupus, and have been suffering with really bad headaches, neck pain etc and extreme fatigue. the doc ran tests and my b12 is 212...my folate 209, I only hope that it is the b12 that is causing this, cos that means I can do something about it, if this is just because of my lupus I am gonna be in a right mess, I have 2 babies and sometimes litterally can't get up I am that exausted....I was hoping that I will be able to cope with Lupus if I can sort my iron levels out, oh well fingers crossed this is what it is!!! I have Lupus, and have been suffering with really bad headaches, neck pain etc and extreme fatigue. the doc ran tests and my b12 is 212…my folate 209, I only hope that it is the b12 that is causing this, cos that means I can do something about it, if this is just because of my lupus I am gonna be in a right mess, I have 2 babies and sometimes litterally can’t get up I am that exausted….I was hoping that I will be able to cope with Lupus if I can sort my iron levels out, oh well fingers crossed this is what it is!!!

]]> Comment on Peripheral Neuropathy – more information by Casey http://www.b12anemia.org/peripheral-neuropathy-more-information.html/comment-page-1#comment-1750 Casey Mon, 15 Feb 2010 20:15:10 +0000 http://www.b12anemia.org/?p=104#comment-1750 My blood test came back saying my B12 level was below 150. This was Dec.2009 I've completed my weekly B12 shots and my B12 level is 480. I've started the once @month shot and I'm scheduled to see my Doctor this month. My hands and feet are numb. I feel better but like everyone I want to have a better control of this. I walk daily to offset the leg weakness, along with my appetite getting much better. At 55 years young I have so much to look forward to. I read the blogs and it helps me understand more. Thank you so much My support group is great and very understanding My blood test came back saying my B12 level was below 150. This was Dec.2009 I’ve completed my weekly B12 shots and my B12 level is 480. I’ve started the once @month shot and I’m scheduled to see my Doctor this month. My hands and feet are numb. I feel better but like everyone I want to have a better control of this. I walk daily to offset the leg weakness, along with my appetite getting much better. At 55 years young I have so much to look forward to. I read the blogs and it helps me understand more. Thank you so much My support group is great and very understanding

]]> Comment on B12 Symptoms by Rita http://www.b12anemia.org/b12-symptoms-2.html/comment-page-1#comment-1702 Rita Sun, 24 Jan 2010 16:31:50 +0000 http://www.b12anemia.org/?p=196#comment-1702 I was diagnosed with B12 anemia 7 yrs ago and at that time I needed infusions 3 times a week wo bring my counts up as well as B12 injections. I take perscription iron daily and was getting B12 injections monthly. I moved to a different state a year ago and got a new doctor who cut my iron pill to 1 daily, I was taking 3 and says I only need injections every 3 months. Lately I have noticed that my feet are a dusky blue and tingling again and I'm not sure that my doctor is on top of this. I was told at the time of my diagnosis that I also had neuropathy which has affected my balance, my memory, I have confusion and the feet issue. I live is the southern coastal part of NC does anybody know a good doctor in this area I was diagnosed with B12 anemia 7 yrs ago and at that time I needed infusions 3 times a week wo bring my counts up as well as B12 injections. I take perscription iron daily and was getting B12 injections monthly. I moved to a different state a year ago and got a new doctor who cut my iron pill to 1 daily, I was taking 3 and says I only need injections every 3 months. Lately I have noticed that my feet are a dusky blue and tingling again and I’m not sure that my doctor is on top of this. I was told at the time of my diagnosis that I also had neuropathy which has affected my balance, my memory, I have confusion and the feet issue. I live is the southern coastal part of NC does anybody know a good doctor in this area

]]> Comment on B12 Symptoms by Lori http://www.b12anemia.org/b12-symptoms-2.html/comment-page-1#comment-1644 Lori Wed, 06 Jan 2010 23:10:00 +0000 http://www.b12anemia.org/?p=196#comment-1644 Michelle, I'm so glad that my blog was able to help you! I know how wonderful it feels to finally get a diagnosis, and you may not believe it now but be thankful it's B12 deficiency. With all the things they probably thought it could be I'd bet this is the best outcome by far. It will take a while for you to start to feel better, and it is usually a gradual thing so give it a little time. In a few months you will feel better and a year from now will be a new person! Thanks for commenting! Lori Michelle,

I’m so glad that my blog was able to help you! I know how wonderful it feels to finally get a diagnosis, and you may not believe it now but be thankful it’s B12 deficiency. With all the things they probably thought it could be I’d bet this is the best outcome by far. It will take a while for you to start to feel better, and it is usually a gradual thing so give it a little time. In a few months you will feel better and a year from now will be a new person!

Thanks for commenting!

Lori

]]> Comment on B12 Symptoms by Michelle http://www.b12anemia.org/b12-symptoms-2.html/comment-page-1#comment-1640 Michelle Wed, 06 Jan 2010 04:49:51 +0000 http://www.b12anemia.org/?p=196#comment-1640 I am so happy to have found this site. I was diagnosed last week with B12 and Vit D deficiency and as crazy as it sounds, I am glad to have finally figured out what was going on!! I had been to a number of drs and had a variety of tests done with everything coming back as normal, but I felt off and knew something just wasn't right. I have had the same frustrating issues with not being able to find simple words, muscle ache, mood swings and I have felt like someone has been sitting on my chest for months! I also suffer from a mild continuous headache on my left side. Fortunately for me, I am always on the go, and I did not realize that my body was feeling the fatigue--somehow I was able to push through most of the time. I went for my first shot today and will continue weekly for the next month and then go from there. I am waiting to see how long it takes for everything to "kick in" and some of the aches to subside. Thank you so much for all of the information. I have learned more from reading this blog than I have from my Dr and finally know that all of my symptoms were not just in my head! I am so happy to have found this site. I was diagnosed last week with B12 and Vit D deficiency and as crazy as it sounds, I am glad to have finally figured out what was going on!! I had been to a number of drs and had a variety of tests done with everything coming back as normal, but I felt off and knew something just wasn’t right. I have had the same frustrating issues with not being able to find simple words, muscle ache, mood swings and I have felt like someone has been sitting on my chest for months! I also suffer from a mild continuous headache on my left side. Fortunately for me, I am always on the go, and I did not realize that my body was feeling the fatigue–somehow I was able to push through most of the time.

I went for my first shot today and will continue weekly for the next month and then go from there. I am waiting to see how long it takes for everything to “kick in” and some of the aches to subside.

Thank you so much for all of the information. I have learned more from reading this blog than I have from my Dr and finally know that all of my symptoms were not just in my head!

]]> Comment on B12 deficiency – what the numbers mean by Crissy http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1502 Crissy Thu, 10 Dec 2009 15:44:53 +0000 http://www.b12anemia.org/?p=50#comment-1502 I Was having alot of trouble with my bladder. I was going to the bathroom about 6 times an hour or more it was alot. I also started having trouble with my vision I then went to the doctor and they ran a ton of test then i was told i had b12 deficiency my level was under 200. I am having to go in once a week for a shot. I was also told i had rheumatoid arthritis and i am going to have to go see a Rheumatologist. I was wonder if anyone else has had bladder or vision trouble with the B12 deficiency or if they have been told anything about Rheumatoid arthritis. Any comment would be helpful. I Was having alot of trouble with my bladder. I was going to the bathroom about 6 times an hour or more it was alot. I also started having trouble with my vision I then went to the doctor and they ran a ton of test then i was told i had b12 deficiency my level was under 200. I am having to go in once a week for a shot. I was also told i had rheumatoid arthritis and i am going to have to go see a Rheumatologist. I was wonder if anyone else has had bladder or vision trouble with the B12 deficiency or if they have been told anything about Rheumatoid arthritis. Any comment would be helpful.

]]> Comment on B12 deficiency – what the numbers mean by Tom D http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1366 Tom D Sun, 15 Nov 2009 23:39:40 +0000 http://www.b12anemia.org/?p=50#comment-1366 My symptoms were classic. Fatigue, irritability (so I was told!)along with racing heart, PVC's(heart)and my calves felt jiggly as though were loose. My Doc finally did blood work and sd. I was "borderline anemic" at 138. I had to ask for b12 after another near passing out, racing pulse episode. He was focused on cardiac concerns rather than my b12 level He stated "you shouldn't have symptoms at this level". I too feel a level of 400+ is essential. Finally, I demanded a b12 injection every 2 weeks. My levels slowly increased to 480+. I can attest to the feeling after an injection and when you know you are due. My symptoms were classic. Fatigue, irritability (so I was told!)along with racing heart, PVC’s(heart)and my calves felt jiggly as though were loose. My Doc finally did blood work and sd. I was “borderline anemic” at 138. I had to ask for b12 after another near passing out, racing pulse episode. He was focused on cardiac concerns rather than my b12 level He stated “you shouldn’t have symptoms at this level”. I too feel a level of 400+ is essential. Finally, I demanded a b12 injection every 2 weeks. My levels slowly increased to 480+. I can attest to the feeling after an injection and when you know you are due.

]]> Comment on B12 deficiency – what the numbers mean by Kim http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1287 Kim Sun, 11 Oct 2009 12:21:57 +0000 http://www.b12anemia.org/?p=50#comment-1287 I have been dealing with B12 on my own. I had been ill for years, seen a ton of doctors and no body came up with why I was ill. Finally found a new doctor who decided to do a few new tests. I was diagnosed with SIBO last year. Wasn't told much about it just handed some antibiotics. After 6 months of antibiotics and no change on how I felt or that the SIBO was going away I asked for my B12 levels to be checked. My levels came back as 240. I was told that was fine. I was also told SIBO would not cause allot of the symptoms I was haveing so it must be in my head. Knowing it was not in my head (I know my body) I did some research on low B12 levels. Come to find out mine was low and if I didn't do anything about it now it would just get worse. I have been taking supplements, 1000mg twice a day and started to notice a difference within a week. I do however notice that if I forget to take them for a while I start getting a few symptoms back. Is that normal? I do not eat any beef or pork, some chicken and fish. How long should I stay on the B12 supplements? I have been dealing with B12 on my own. I had been ill for years, seen a ton of doctors and no body came up with why I was ill. Finally found a new doctor who decided to do a few new tests. I was diagnosed with SIBO last year. Wasn’t told much about it just handed some antibiotics. After 6 months of antibiotics and no change on how I felt or that the SIBO was going away I asked for my B12 levels to be checked. My levels came back as 240. I was told that was fine. I was also told SIBO would not cause allot of the symptoms I was haveing so it must be in my head. Knowing it was not in my head (I know my body) I did some research on low B12 levels. Come to find out mine was low and if I didn’t do anything about it now it would just get worse. I have been taking supplements, 1000mg twice a day and started to notice a difference within a week. I do however notice that if I forget to take them for a while I start getting a few symptoms back. Is that normal? I do not eat any beef or pork, some chicken and fish. How long should I stay on the B12 supplements?

]]> Comment on B12 deficiency – what the numbers mean by Lori http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1282 Lori Wed, 30 Sep 2009 11:44:28 +0000 http://www.b12anemia.org/?p=50#comment-1282 Linda, As I'm sure you have read, my (non-medical professional) opinion is that anything under 400 should be considered deficient. I have heard that B12 and Crohn's disease can go hand in hand. You said probable Crohn's, so I'm guessing he hasn't been diagnosed yet. I don't know if you are just waiting for test results, or haven't found a Dr. yet, but finding a Dr. should be your #1 priority. You need to let your Doctor know everything you told me, as well as the many things I'm sure you didn't mention. Don't be afraid to switch your Dr. or get a second opinion if they don't listen to your concerns. I have discovered that most of the time you need to be proactive when it comes to B12, especially if you are younger. Many Dr.s don't take it as seriously as they should and most of the data to treat the condition pertains to older people. I don't know where you are located in Florida, but I googled Crohn's Dr.s and got a ton of info. Here are the first few that came up that may be helpful: http://www.mayoclinic.org/crohns/ http://www.floridahospitaldigestive.com/services/index.asp http://organizedwisdom.com/Pain_Management_Specialists_in_Florida http://www.medhelp.org/ I hope you are able to find a solution and get him the care that he needs to feel better. Good Luck, Lori Linda,
As I’m sure you have read, my (non-medical professional) opinion is that anything under 400 should be considered deficient. I have heard that B12 and Crohn’s disease can go hand in hand. You said probable Crohn’s, so I’m guessing he hasn’t been diagnosed yet. I don’t know if you are just waiting for test results, or haven’t found a Dr. yet, but finding a Dr. should be your #1 priority. You need to let your Doctor know everything you told me, as well as the many things I’m sure you didn’t mention. Don’t be afraid to switch your Dr. or get a second opinion if they don’t listen to your concerns. I have discovered that most of the time you need to be proactive when it comes to B12, especially if you are younger. Many Dr.s don’t take it as seriously as they should and most of the data to treat the condition pertains to older people. I don’t know where you are located in Florida, but I googled Crohn’s Dr.s and got a ton of info. Here are the first few that came up that may be helpful:
http://www.mayoclinic.org/crohns/
http://www.floridahospitaldigestive.com/services/index.asp
http://organizedwisdom.com/Pain_Management_Specialists_in_Florida
http://www.medhelp.org/

I hope you are able to find a solution and get him the care that he needs to feel better.
Good Luck,
Lori

]]> Comment on B12 deficiency – what the numbers mean by Linda http://www.b12anemia.org/b12-deficiency-what-the-numbers-mean.html/comment-page-1#comment-1281 Linda Wed, 30 Sep 2009 01:11:46 +0000 http://www.b12anemia.org/?p=50#comment-1281 Hi Lori. I found your comments very interesting. My son(young adult) has b12 level of 300. He used to have in the high 400's but has been dropping for last 2 years. He feels terrible fatigue, tremors, insomnia, trouble thinking and irritability. He has probable Crohn's disease. I would really like to find a dr who would treat him for b12 deficiency, even though he is above the level, because I'm sure he is suffering from it. We live in Florida. Linda Hi Lori. I found your comments very interesting. My son(young adult) has b12 level of 300. He used to have in the high 400’s but has been dropping for last 2 years. He feels terrible fatigue, tremors, insomnia, trouble thinking and irritability. He has probable Crohn’s disease. I would really like to find a dr who would treat him for b12 deficiency, even though he is above the level, because I’m sure he is suffering from it. We live in Florida.
Linda

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